Bitch and tired, tired and a bitch.

07/03/19

Today I took a days leave from work to go to a ‘Living with and after Cancer’ event. What even is this doing in my life? I awkwardly sat at a table at the back (of course I did!) and then random people joined me and I had to pretend I wanted to talk to strangers. Why am I so bloody socially awkward. The day was set up with some talk from ‘inspirational’ people and in their own way they were. A girl was up first who hadn’t lost her hair, but as a hairdresser she had seen some bad wigs, so now her main hairdressing business is working with girls who need nice wigs. It felt though that I was watching some free promotion in play.

Next up, there was a talk on exercise and how good it is for the body. No shock there – as a mid grown adult I’ve pretty much known that exercise was good for me since I was six. The presentation continued with somebody who used to carry a lot of weight and now is a fitness queen and promoting her business. Yep – I’m in full on bitch mode.

Then my Clinical Psychologist stood up and did his mindfulness session and had the whole room close their eyes and do the breathing exercise that I last did in my 121 session him. I couldn’t close my eyes, but watched as a whole conference room of people sat with their eyes shut and bought into the experience. It was surreal.

Lunch saved me, then the afternoon was in some smaller break out sessions where I sat and listened to the CEO of a company that was set up to support those with cancer. I reverted to bitch and couldn’t help but think that she wasn’t not paying herself. By this point I felt like I was in a promotional machine and cynical business head wondered how much these companies would have paid to get the advertising that they had had today. God, bitch mode was in full play here.

The day was saved by Bobby Moncur doing a talk in the final slot. He talked about his diagnosis with cancer of the colon and then seven years later oesophageal cancer. He was so humble, so real and so honest with his attitude. When the floor was opened for Q&A’s a few people got some cheeky football questions! It amused me. But then, someone asked how his family had coped. And by god, a room full of people watched him break. He struggled to compose himself before answering and then said the most honest thing anyone can say – he didn’t know. Do you know what – I get it. At no point will I ever understand how my family and those closest to me feel, watching me do this journey. I know it hurts them, upsets them and shakes them up; I also know that they won’t ever fully let on to that as they think I am going through enough and don’t need their emotional baggage as well. I get all of this. But I want to help them too. I want them to know that I am there with them. We are all sad, we all didn’t want to do this journey. But I wouldn’t do it with a more loyal group of folk in my corner.

Tonight, on the phone to my mother, I was trying to explain how shit I feel. I have a spot on the end of my nose (couldn’t make this shit up) and the last thing I need when this purely medicinal part of the journey is over is my boobs sorted out. I’m bald, I have no eyebrows, no eyelashes, scars in my nose as I have no hairs (so nosebleeds aplenty!), spots on my chin. My boobs are way down on my list of things I would like to sort once this crap is done.  It still weighs on my mind that it is an option I will need to consider, but by, it’s not something I can deal with now.

08/03/19

Back in work today and one of my lovely colleagues actually told me I looked like shit! I mean, she grimaced when she said it, but she said it!!!! I’d started the day at 8:30 and I was in pretty much solid meetings through to 17:00 and I accepted I probably did look like worse than shit today. I am tired, fifth chemo is catching up with me and I am exhausted beyond anything even being a mama to a newborn does to you. I still remember that first year (I don’t do well without sleep!) and I remember being obsessed with the number of minutes sleep I had (note I said minutes and not hours because some nights it could be added up to just minutes!).

This current exhaustion is so different. Its not sleep deprivation – I could sleep for lots of hours and still feel tired – this tiredness is in my bones, in my core, in my brain. I’ve known nothing like it. My entire body is tired and I’ve known nothing like it.

But I’ll still keep trying to have this. I’m tired, but I have this.

Radiotherapy is coming for me!

01/03/19

So after the relief of the result on Wednesday (lump was a cyst, drained and disappeared!), and a half day at work on Day 9 (remember Day 9 I should be hibernating and this was the agreement with the man cub – I am stretching it now as I haven’t had any issues, but I can’t push it too far) I booted the man cub and cub out the door for school and went back to bed until 1pm. Eeeek, how bloody lazy!! I mean, I have then done the dishes, hoovered and wiped the bathroom (can’t help myself) but done nothing else and still feel really flat. There is no emotion – just middle ground, no high, no low.

The postman had a lovely job today delivering my Radiotherapy invite to kickstart that process. Seventeen pages of information and five pages of side effects. I haven’t read that. It feels like Google and I have had a bit of flick but nothing too in depth. I mean, I am going to live this – I don’t need to read it do I?! I have lived this whole journey slightly blind, trusting in the NHS and the professionals who I put all my belief in to do their job well. I haven’t felt the need to start searching for information, solutions, changes to my life. Today is no different. The paperwork is filed away with the rest of my letters which are getting to a nice pile for the recycling one day.

03/03/19

Lazy like Sunday mornings – the cub has asked for a PJ day! Who am I to argue about that. I love it, and we chill out, laze around, watch some cubs TV and play a lot of games. Today was also a gift in the form of another mama. She offered to take the cub next weekend for a play date (without me!) – if I drop the cub off, she’ll drop her back here. Full afternoon of freedom (and its pre chemo and rugby weekend so will be feeling better than usual and cheering on the Scots! We may be a little bit squiffy next weekend!).  It is the nicest offer in the world though.

While a lot of people have said that they would take the cub for a play date I always feel insanely awkward approaching the subject directly. How do I even go about that – ‘will you please babysit my cub so I can have a few hours break’? All of that sentence jars with me – I’m turfing my cub out of her own house so I can selfishly have a break from her, bearing in mind I see so little of her anyway working full time/dealing with hospital appointments and then I want to see even less of her. The guilt of all of this eats me away sometimes.

Then tonight I have randomly broke. Huge sobbing tears as I walked past a picture from our holiday last August of the three of us. A holiday at the time I said was marred by cancer. Little did I know that it was the least of my worries at that point and at the time it wasn’t by any stretch the worst part of this journey. I wonder if I will ever get to the point where I can identify  which part is the worst. Thinking back to that holiday now in a different headspace, it seems silly that I was so hung up on the cancer that was in me, that it was small, that it was operable and could be removed.

I never anticipated in that smiling family photo the future – I was too busy dwelling on my own self pity – I didn’t realise how badly I would be scarred by this. In more ways than two surgeries, five chemos, two broken veins, baldness, sore skin, poorly eyes, tired muscles and random breakdowns!! Also the fact that my cub now thinks a Sunday PJ day is a norm rather than a treat. God love her. What has tipped me over the edge even more after looking at the family photo, I’ve got no memory photos lining up my phone history. Because we’ve done all the PJ days (and I have an adverse reaction to any camera as my baldness is so unattractive to me) we haven’t done as much in our off days, even whether that be doing a park run up the lane, a walk round the woods or something more exciting. Every time my timehop reminds me what we were doing a year ago or more, I get upset all over again. But I can’t change it so need to decide what to do about it. I know that we don’t have to ‘do’ things to make memories, but I still feel guilty that I have been more than useless with this and that my gorgeous baby girl is getting less of me than she deserves.

04/03/19

I have another bad night tonight, closely following last night feels like it all ties in and I haven’t dealt with last nights wallowing before I career into tonight. I HATE having no hair. I am so sad I have no hair. I can’t look in the mirror (I avoid mirrors at all cost). I don’t put on makeup anymore at all (I mean what is the point if I don’t have eyelashes?). I haven’t taken a single photo with the cub without my woolly hat on (and even then there still aren’t many).

There are positives, I don’t have to make an effort about straightening (used to add a good half hour to my morning routine), blow drying (twice a week – the advantages of crazy thick hair), tweezering stray eyebrow hairs, waxing and shaving (saved a fortune on these products). But I have also never felt so unattractive. I was no supermodel, but I could live with that. Now I feel less somehow, its strange because internally all I hear is my own voice and that hasn’t changed. But then the cub will stroke my head and I remember I’m bald. Christ, bald. I HATE it. I have no idea how the man cub is dealing with looking at me every day. Ugh. This day has also ended on an absolute low.

But I am going to get through this. I am sure I will. I’ve got this. It’s just getting harder to have all of this.

The emotion of this journey..

So it’s taken me a while to write again after dealing with the aftermath of the ‘new lump’ status. I’ve had a few people contacting, getting in touch and not realising that I am already a couple of  months ahead of this. Because I can’t deal with typing my raw emotion when it happens. I write it I raw emotion in my wee black book. But dear me, no one wants to read that book in its entirety! So I type it about two months later and then post. This does cause confusion and I appreciate that for my closer folk they don’t quite know how to deal with conversations with me! But I am still doing this journey fine. I’m still here and I’m still laughing.

I’ve thought a lot about how I deal with the emotion of this journey and I am quite an enigma. In real life I spend a lot of time being  blasé about how I’m going. Usually because I’m either freaking out about another lump (!) or just trying not to sound like a whinging minny. So I put on a brilliant smiley face and usually knock out that I am ‘doing just fine’. I usually start over talking at this point and it distracts everyone from their original question! Works a treat every time!!

I would love to offer advice to people of how to approach this with someone who has just had a cancer diagnosis, is living with a cancer diagnosis, or is supporting someone with a cancer diagnosis. And do you know what – I don’t have all the answers. All I know is how I have dealt with it, how I want to be dealt with, and how some days I want to not be defined by the bloody twatting diagnosis.

In all honesty, most people have been absolutely amazing and have reacted to my cues. If I’ve shut down and pretended that I am doing A.O.K. they have treat me as such and just done business as usual. When I have had a wobble and blethered about bollacks, they have listened, nodded and tried to understand, which is also OK as no one can really understand unless you live it. I love all of these approaches, but I also know that people do walk on a few eggshells approaching the subject with me. The funniest situation by far is when I talk about the end of the journey and the offer of re-constructing the boobs to be equal – not a single person doesn’t give a furtive glance at the boob area to see if they can clock whether they are that far off!!!! Internally this makes me chuckle more than it should! Human behaviour is fascinating! (P.S. I would also be in that camp, and try to do it subtly – let me explain, on the receiving end, you aren’t being subtle!! P.P.S Padded bras are tremendous at their job!!!).

Enigma continued, I am struggling with people who ignore (are terrified of raising the issue with) the obvious. After the big shave, I started seeing professional colleagues over the next few months (who had no idea about my diagnosis and journey). Some of these have reacted well (no emotion, continued meetings as if nothing was different), some have blethered like idiots while they compose themselves, some have asked how I am outright. Do you know what, I still don’t know what I prefer. Because I also know that those who haven’t directly asked me the question have snuck round to colleagues/friends and asked them – but does that matter? They’re not asking me because they don’t want to upset me (I presume), but I would rather they asked me directly so I could be the one to spread the word, to explain the need for self awareness and self care, the need for every woman in their life (and them included) to look, feel, check, follow up. I also know that some days I wouldn’t have done well with being asked how I was directly (for some reason I get more upset telling relative strangers how I am, than being my bullish self with those closer to me!). So possibly my advice would be to gently check in with anyone who looks like they could do with it. I mean, this applies to any situation if I’m honest. Woah – I’m tapping into my Mental Health First Aid training here, and while I got this at the time (I did it when I was newly diagnosed!) it’s probably just finally resonating like church bells in my head.

So check in. Check in with anyone. At anytime. Just check that they are ok. Regardless of whether you think you’re appropriate or inappropriate – a general check in will always make a difference (regardless of how close people have been to me but have made the effort to check in this has made a difference). Thinking about it, this should just apply to life. Never mind someone who has had bad news, a bad day, a good day, a bloody rotten day – check in.

Because we all have to have this journey through life. And we do have it. If I have got this, then everyone I know has this.

Limbo cont’d…. Lump status confirmed!

26/02/19

So after waiting an inordinate amount of time to see Pauline (and laughing far too much about the Caravanning magazine) we finally get called through by a random nurse to get taken into a room where we wait again for my lovely Pauline.

She rocks in like my surrogate mammy, with her beautiful tan brogues (why do I always get fixated on the shoes!), and asks me to take my top clothes off. By this time it is 3.40pm (I mean 40mins isn’t a bad delay!), and I’m half undressed before she’s finished even asking! I’m honestly at the point where I just get the boobs out for anyone! I promise Pauline that I won’t do it in the middle of the local shopping centre if I do see her there.

Once I’m on my back and Pauline is having a feel of the boob area, she says ‘hmmm, there are two lumps there, and one over here’. WTAF. I mean, I was here for one lump. Just the one. The one that I have spent a lot of time convincing myself that it is a cyst. Don’t now tell me that there are three. I can’t now deal with three in my head. She follows that up with ‘I think (THINK?!) they are cysts, but the consultant is scrubbed up and in surgery so he might drain them tomorrow’. Tomorrow? TOMORROW????? I have already waited four days! Honestly, I am done. We leave the hospital no further forward.

I did leave with a flea in my ear though. After the examination she asked how I was doing, whether I was resting, whether I was taking enough me time and whether I was giving myself a break. And do you know what, I got a bit bloody teary. I looked at the man cub and as I teared up, I could see him look a little upset. I blame the bloody CP as this kind of kindness wouldn’t have ever floored me before!

In amidst this crazy day, we picked the cub up from after-school club and the tinker that bothered my cub and I before was at it again. As soon as we walked in I could see her whispering to the cub ‘take your mams hat off, take it off’ and my cub looking so uncomfortable. I’m so cross and don’t quite know what to do with that yet, but I’m sure that an opportunity will present itself at some point for me to really deal with it. I have too much going on to do anything with that at this moment.

At home this evening, I realised I have a spot on the end of my nose. Now, seriously, if fate isn’t trying to deal me a duff card, then I don’t know what is. I already have no hair, no eyebrows, no eyelashes, bloating, pale skin, water retention – lets add a spot!! Bang and centre on my nose. Dear me. However I have also laughed a lot tonight. As the man cub and I talked about the day I did remember that mid-way through Pauline examining the boobs I looked over and saw him staring at the ceiling!! As if he’d never seen my boobs before! As if he’d never witnessed my body naked!!! I mean, we’ve had a child together – it’s a given that he has! But, seriously, at 10pm we were broken laughing about this!! I have never chuckled so much.

27/02/19

Well today is going to be a long day. The man cub has taken the day off as we could get a call at any point to return to the hospital. I however have meetings so have launched  the cub into school and started the day with my fellow colleagues in a coffee shop. Trying not to be distracted throughout, I make it back to work with them at 10am and still no call from the hospital. Finally at 10.20am I get the call to come in at 4pm. Another six hours. FMD’s this is exhausting. I work my way through meetings and emails to gain some sense of normality and leave early to pick the man cub up to head to the hospital.

At that moment I get the call about radiotherapy. I have my pre assessment booked for the 28/03/19 (a months time!). I am also privileged to get a parking pass as having cancer must treat me to one of them! When asked what time of day would suit me for radio I said early as possible to which they said they had 8am appointments. I might need to revisit those logistics at a later date – we live an hour from the hospital, through a major city and the associated traffic. We’re going to have to see how that pans out!! This is certainly an issue for another day. I need to deal with todays issue first!

We arrive at the hospital at 4pm (bearing in mind we need to pick the cub up from after-school club by 6pm and we are an hour away!). We’re sat in the waiting room with the remaining folk from day session and my phone is on 10% battery so I am bored. The man cub goes to ring his work boss to update her on the situation and reappears within 30 seconds to say he’s dropped the phone on the floor and he’s killed it. I burst out laughing. I mean – this situation can’t get any more ridiculous. We have a dead phone, a nearly dead battery, a cub that needs picking up in an hour, and at least three other people to be seen before me. We need a plan!!!

The plan we come up with depends on timings and if Mr A calls me before 5pm then we could be ok. If not, then I face a two hour bus ride home by myself so the man cub can go and get the cub! To be honest, we are still rolling about laughing at the phone. It is seriously the highlight of ridiculousness and I’m sure again we were unpopular in the waiting room, but it’s the humour that keeps us going.

4.45pm and a nurse calls us through. We’re cutting it fine here, and while she tells me to undress I do as I’m told and take a seat on the bed – at which point I nearly tip myself off the bed as it was the flexible end and I hadn’t realised. Cue more laughter from the pair of us, and I decide to just have a lie down as by this point I am done. If Mr A doesn’t get his arse in here quickly I am about to lose my man cub and deal with a prognosis by myself. And I do not fancy that. I also know that the man cub is clinging on to the last few moments himself as he has been with me every step of the way. We are a team, a unit, and we do this  together.

Mr A arrives at 4.57. Cutting it fine here. My lovely Pauline is with him and she points him in the direction of the ‘three lumps’. Very quick confirmation on the big lump that I found – IT IS A CYST! Yay!!!!!!! A humongous needle appears but within moments it is drained (yuk!). The other two are also cysts (felt them) but too little to do anything with. I am quite lumpy apparently. He did try to drain one of them and as soon as the needle went in the cyst moved. Joy!! I love being a human pin cushion! He then had a quick chat about seeing me in May and we’d discuss next steps. By this point I wanted to get dressed and leave. Relieved. Less stressed. Putting the past five days to bed.

Because this has been gruelling. This last five days have worn us down, taken my last positivity and spread it thin, my last ounces of strength and scattered it, and defeated my pragmatism in all ways. This has been a harder pill to swallow than the first diagnosis. I have a lot to learn from this and deal with, but today I am going to have a drink, chuckle about the phone and our damn luck and be grateful for the family I have. Because I have this.

Limbo – waiting for the lump status TBC

24/2/19

I’ve spent the weekend hiding behind the man cub. Trying to hide my true face. We saw his family yesterday and then a mate of mine today for Sunday lunch, and I have to lie about how I am. I have to remember how I was two days ago and go with that. I can’t possibly worry anyone else with this gnarly lump. Why worry them if it’s nothing.

I’ve also had the most stilted conversations with my mother. But I can’t do this to them. They do not need this worry. At all. None of us do. Aaaaaagh. My logical head is suppressing this to provide normality over the weekend for the cub, but I see my lovely CP tomorrow and I have a feeling all of this might fall out onto his lap! I am still tempted to rearrange but I also think I need it (which – wow – is something that I wouldn’t have ever appreciated before I tapped into mental health help).

Today has also been the longest day – the normality of chemo is still underway and hallucinating at 4am had me awake and promptly sacking off the 10am party it was my turn to take the cub too. The man cub was thrilled! But the cub knows I’m poorly. When we were hugging this morning and I said I would be well soon, she said again would that mean my scar would disappear. The poor cub can’t get her head round it and it breaks my heart. I feel guilty for the last year being so disjointed for her. I feel so guilty about this.

25/02/19

Back into work – day 5 after 5th chemo. I feel like shit, I look like shit, I have puffy eyes, a puffy face, I haven’t slept and I am officially grumpy.

I see my lovely CP today for my third appointment and talk to him about our cub – after one example of her writing me a note after I had said their was no more snacks before bedtime that said she was sad, she was angry, she was upset, alongside a sad face with tears he said that she sounded profound. Yes mate – she really is. And I cooked her! I couldn’t be prouder!! I then realised that I hadn’t done my homework for him – oops. I was supposed to look at my values and decide which ones were most pertinent to me. I also haven’t done any meditation. He gave me a bit of a bollacking saying that we spend every day doing our teeth for two mins so should be able to spend three mins on our mental health. That was me told!

However, we then got onto ‘unhelpful’ thoughts and why we do this to ourselves. He was really surprised by the fact that I am furious driver – and when he said it I couldn’t  really explain it. Why get mad at other idiots / traffic / lights changing etc when actually I don’t have any control over them (I need to chill out!!).  I’m also really getting my eyes opened to how I have changed during this journey and how previously even if I did have odd moments when the devil on my shoulder was at it’s best I always had the strength and will to turn back to the good in life, to find the positive with every scenario. This time I just don’t seem to have been able to find the strength. As we got near the end of the session  we touched on why I am so sad. My cub, my world, my everything and the fact that I might not be here for her literally breaks my heart in two. A few tears but I quickly pull myself back together as I do with everything. I can’t possibly think like this because if I start crying I’m not sure I’d stop.

26/09/19

It’s Tuesday! I mean, its Tuesday. Should just be another day in the cycle of chemo, but no, I am going to spend the day waiting for the result on this lump which hopefully after four days I can finally put to bed. My lovely Pauline rang me at 9am and said to come in at 3pm. Six more bloody hours. While I have to work. Jeez, I might have a timescale but I’m also going to have to be effective and try and deal with this internally. Today of all days I had a catch up with my boss who has been amazing throughout this, I can’t fault his approach and while I am probably not the easiest person to manage on a normal day he has totally had my back on my bad days.

After alerting the man cub to come pick me up at 2pm I knuckle down and try to get on with the day. The usual mundane tasks of work are seen through, I actually laugh a lot because my team are bloody hilarious – I could write an actual comedy about the craic that occurs daily with these lot! The eclectic mix, the range of ages, the wind ups versus the serious, the challenges of a role that encompasses essentially two very different teams and I couldn’t be happier. This is my happy place and I bloody well love my lot. There may be days that I wonder what the hell I’m doing – talking about champagne one minute and blocked toilets the next (don’t ask!) – but 99% of my days are spent loving what I do. And I reckon that’s a good job. I know for damn sure in my last job the ratio wasn’t that good and while the people I worked with were amazing, the job itself lost its appeal. So I class myself as very lucky that I have stumbled on this job. But luckier that I also have an amazing bunch of people who I work with. I also realise today that I don’t tell them that enough. I need to do that more. These days when I am in work and not either laid up with chemo side effects or in isolation are the days when I live well. That is down to my wonderful colleagues. I couldn’t do this without them.

I make it to 2pm, and make a swift escape to head up the road to the hospital. The man cub and I quip that we are a bit bored of this journey now. We park the car in the same back street we always do (refuse to pay extortionate fees in hospital grounds when I have legs that will walk for five mins), walk the five mins through housing estates, enter the same door through the hospital and make our way into the bowels of the hospital; hoping that we can leave with a load unburdened. The walk to the Breast Cancer Unit doesn’t ever get any easier. It’s a beautiful walk (if any walk can be in a hospital) with some amazing photos on a long corridor, of the history of our city, and we stop and take it all in as we’re early. As if we’re tourists. Just visiting. Flying visit. Nice place to be this. Honestly – you couldn’t make it up sometimes!!!!

Into the waiting room and I entered at the back end of a ‘normal’ afternoon clinic where women are waiting with partners, carers, children, parents to get their own lumps and bumps checked. I’m pretty sure the last thing they needed today was me rocking in with my bald head, clearly on a journey through treatment. I’ve never felt so shit.

But then, as we do, the man cub and I found some humour! He picked up the Caravanning magazine (that is five year old) which we have already read three times at least, and we started having a proper chuckle again. Honestly – we are the most unpopular people in the waiting room as we try to maintain decorum but usually end up guffawing laughing. I appreciate we’re in a bloody cancer waiting room, but this is what we do. I’d apologise if I offended anyone!

Because, do you know what, we are doing our best to not let this journey define us. We have this. And we will continue to have this. I am absolutely sure.

Curveball – another lump appears

22/02/19

Half term ongoing, chemo done on Wednesday, recovery working and its two days post chemo. Then BAM, lets destroy this little beautiful moment of half term, cub craziness, escape from work legitimacy. I am so f**king angry right now, so cross, so furious. Having my lie in today (we take it in turns in this house!) I laid awake listening too the cubs downstairs nattering away, cherishing my family and the love I have for them.

Later on (still just morning !) I’m in the shower and remembered to randomly check out the boobs (I still forget regardless of the journey I’m on).

Yep, another lump, is it a lump, no it’s not a lump, let me check again, yes, please no, stay in the shower – it’ll disappear, FML, this is not how I anticipated my morning turning out. It’s in the good boob (but the one that I had found the last lump in and turned out to be a cyst, they found the cancer in the other boob). Nooooooo.

I quadruple check before shouting the man cub in for a check. (Lets also be clear, romance is a little bit dead when you’re asking your OH to prod your boobs rather than anything else in the romantic angle). But yep, by the look on his face it’s definitely a lump. A lump that he can easily feel. A huge lump.

I can see us both sag under the weight of the knowledge. We can’t act like we did before. A lump can be more sinister now. I mean, it might not be, but we also are now well versed in the alternative bad news version. We don’t like that version. I can see in his eyes that he is working through all of his own pragmatism to deal with his own emotions as well as the fact he knows he’s going to have to deal with mine. This is so brutal. And it is Friday – we are heading into a weekend again with all likelihood that we aren’t going to get answers. It is an enormous lump. Huge. A bloody lump. Aaaaaaggghhhhhh. I don’t know how I didn’t notice it earlier? How did I not notice it earlier.

The self pity moment is destroyed by a small cub rocking into the bathroom shouting that she needs a poo. I mean, if there’s a more grounding experience needed I don’t know what could meet that criteria!!

Cub toilet functions dealt with and distracted with the million toys she possesses I ring my Pauline. The phone bounces and I end up speaking to some random Receptionist that listens to my woe and then decides to impart the knowledge that Pauline isn’t back in until Tuesday (work to be done on dealing with cancer patients here!!!). She does tell me that I can see Caroline (one of the other Breast Cancer Nurses) on Monday, but to be honest – as ridiculous as it sounds considering a lot of folk have now handled the boobs – I can’t deal with building another emotional attachment to an NHS member of staff while they deal with my boob area. I make the call that I’ll wait an extra day. I ask for a call back from Pauline on Tuesday. It is Friday. I need to wait until Tuesday. Three full days stretch out in front of me as I put the phone down.

My pragmatic head is staying in a good place. This is a cyst. Has to be. I’m in the middle of goddamn chemotherapy that is killing all good cells in my body along with the bad ones. There is no way this can be bad.

My devil on the other shoulder is messing with me. Could it really be cancer again. What if it hadn’t been detected in the numerous ultrasounds, MRI’s, scan’s, feels, and its just been slowly growing away. What if it has grown through chemo and is aggressive. Is this my life now – every slight lump, every pain in my body, every niggle that is a bit random – will I relate it to cancer? My likely answer at this point is yes. And this frustrates me more than anything (will talk to the clinical psychologist about this). I have never been a person to immediately go to worse case scenario, I don’t believe in wasted emotions on something that ‘might not’ happen. It’s a waste of time in my old opinion. So now that I am in a head spin I am telling myself off at the same time as bottling up everything and trying to have a normal weekend which is stretching out in front of me like a wasteland.

Two hours later I also make the decision with the man cub that we aren’t going to tell anyone about this latest development. We are hunkering down and going to deal with this ourselves. There is no way I can put the parentals, wider family and friends through this uncertainty. I appreciate I didn’t put any of them through the waiting game the first time, I certainly, definitely, defiantly can’t put them through it now.  The last time I had to tell everyone an outcome that I never thought would be words out of my mouth. It would seem perverse to put them through the waiting game this time if there is no need. We decide we can do this.

While appreciating it is going to be a long three full days until I even get to speak to Pauline, I pull the big girl pants on and whack a smile on the face. We have a family catch up with the man cubs side tomorrow, and a catch up with my friends who have also been going through their own cancer journey on Sunday for a lovely lunch and at no point can we tell any of them, give anything away about our turmoil, or be any less than our usual cancer living selves.

I also suddenly realise that I have my clinical psychologist appointment on Monday. I so feel like cancelling at this moment. But maybe this might be exactly what I need.

We have this. We’ve got to have this.

Fifth chemo – lets be having you…

19/02/19

I got my fifth card from my gorgeous colleague in the chain of chemo cards. ‘It is what it is, and what it is is shit’. Couldn’t have put it better myself. And the beautiful message to build me up is what I need. I appreciate these cards more than she will ever know. I am so apprehensive for tomorrow and need to get my big girl pants on. I’m already thinking about side effects and how quick they may kick in. All the while I am getting so tired. These drugs are certainly breaking me down, so I’ll hope that they’re doing the amazing job they are supposed to and wiping out any naughty cells that might be still lurking.

But tonight we have had a lovely evening pre chemo. It is half term and we have dispatched the cub to the parentals for the evening, so decided to have a cheeky walk down to the pub, beat the man cub at pool while we waited for food in the bar (we moved out of the normal bar area as it was going to be quiz night and we ain’t that clever!). I managed to taste my food (before taste disappears tomorrow again) and we had a lovely evening reconnecting. We laughed and laughed, then froze on the brisk walk back home. Which is where we discovered (for probably only the fifth time as cub never stays out) that we don’t know how to be empty nesters anymore! So had another drink and felt a bit naughty!!

20/02/19

Fifth chemo – lets be having you. Wake up crazy early and wait for the alarm to signal that the day has actually started and we need to do this. It was the Oncologist appointment first today and we both anticipated it might well be a joke again. True to form, it was. I did actually see the lady Doctor, who I have distinctly gone off, who did actually give me some more information about the next stage. It will likely start in April, four to five weeks after the end of chemo. Then twenty days (not weekends!!) of being blasted for five to ten minutes and I’ll do a two hour round trip for the pleasure! Five minutes later we were headed for the chemo ward. Not really equipped with knowledge, but some timeline at least.

On the ward, we grabbed a corner seat (different one! We like to be rebels!) and the day continued to be a bit shit. My veins weren’t playing and after the second go, there was slight panic in the man cubs eyes which was mirroring my inner panic. I couldn’t get this far and end up not getting the damn drugs into my body. Two chemo left and I needed these veins to pull one last miracle for me. Third nurse worked a charm a finally got the needle in. I thanked all the gods at that point.

Then a mother and daughter entered and started rearranging the furniture for the daughter and her mate who was due. As the man cub and I rolled our eyes and thanked our lucky stars that I was halfway through getting the drugs dripped through. Eavesdropping, I remembered that I am very lucky – the daughter mentioned to the nurses that she had ten attempts to get a vein before she was fitted with a ‘port’, (still not googling so not 100% here), where something is placed just below the chest skin and the needle is pushed through the skin into this. It took everything I had not to wince as the nurses rammed a needle straight through that girls chest. I’m going to keep being grateful.

As the last bag of saline was hooked up to me, we had to endure a last half hour chat that you literally can’t unhear. The point where one of the girls was discussing emailing her consultant and subject header was ‘MUST READ’, I decided that I must be a sweetheart of a patient. I turn up, I ask very few questions, I do what I’m told and I’m ultimately compliant! In some ways this could be naïve and but I’ve chosen to adore the NHS for what it is doing for me and take the ride in their hands. I might change my mind when I Google later on, but for the moment I’ll trust all the health care professionals who are a lot better equipped and knowledgeable than I am. I also have a word with myself as we leave; who am I to judge someone else going on this hellish journey. She may well be justified and have a consultant that is the equivalent of my oncologist, slightly useless in the patient concern but also extremely clever. If she wants someone to ‘READ’ her email, why am I sat here rolling my eyes. I’m leaving the ward winding my neck in (and for a sleep until the cub gets dropped off!).

We’re still both all over this, taste is going already, but I’ve got this and only got to have one more chemo! Lets do it!!