Day 5 – 7 radios, plus second wait to get (post C) lump checked out…

29/04/19

Day 5 radio, and Monday morning blues have got me down. I’ve been put through the windscreen twice this morning at a roundabout and traffic lights (seriously give me strength Dad!) and traffic was an absolute shocker. It had been fine on the way to the hospital and the usual routine is now being played out with a military precision. It is so impersonal, check in, sit for three mins max, strip off, don hospital gown (opening front), lie on gurney, get pulled, pushed and prodded into position, count down three lots of radiation spurts in a cold room by myself with random music playing, all done, get dressed, leave – rinse and repeat!!

The journey back to work was a shocker and I was way later in that I usually am. But my full time workload is back on. There is no expectation that I can’t achieve this now. I feel like everyone just thinks I’m rocking in late and should be coping lovely. As if I’m back to normal – just with less hair. It’s that bit. The less hair. For all intents I am ‘back’. But I still hate it when people do a double take when they see me. But what can I do? I just don’t know anymore. I’ve got all these balls up in the air at the moment and I feel like I’m going to drop a few at any given moment. My  cub, my man cub, my family, my friends, my work, my radio appointments, my lump, useless doctors, household duties; all of these are pulling me in directions and some not the same direction. Aaaaagh!

Yet, because I am now nearing the end of this damn journey, I’m OK. Or I should be, it feels. I don’t necessarily help myself as I am notoriously bad for telling anyone I am struggling. I always see it like an admission of failure. And I hate the feeling of failure. So I am always reluctant to admit that I might be struggling. My own worst enemy! I also feel like a bit of a fraud. I managed to make it through chemo, working full time. That was way more brutal on my body, but I also worked from home a lot more, and took a few more days sick during that time. With radio, I don’t feel like I can justify taking ‘me’ time.

Then tonight I have finally pulled together a letter to the Doctors about the treatment I have received. Hilariously, in this day and age, their complaints system requires you to post in a letter. I assume, because they assume you will lose interest by having to put pen to paper / print out a letter and then actually post it. Antiquated doesn’t even describe it.

So I have written and rewritten a strongly worded letter to see if I can get some sort of solution to the limbo I am now in. Bear in mind, their complaints process isn’t detailed on their website (you have to pick that up from the Doctors too!!), so I don’t even know how long they have to respond to me. Could be another ten days. Bloody joy!

01/05/19

Day 7 of radio and I am now closer to half way. I am prepping the cub for the over half way countdown, but we aren’t quite there yet.

Today is also the day when I need to pull on and own those big girl pants again and get back in the general population in the Breast Screening waiting room to deal with this second pesky lump. I have done so much better this time (post cancer) by not procrastinating. The last two days at work I have buried it deep and carried on (my clinical psychologist would have been proud!). But don’t get me wrong, it has also followed me round like a rain cloud. It’s always been there. It just hasn’t burst yet.

I travelled up to radio for the seventh time today (one lot of whiplash but no road rage so quite a success). Hilariously the background music choice of the day was ‘White Christmas’?! Who actually vets these songs? Although it did give me a good giggle while lying there half naked being blasted with rads! I returned home to work. Trying to go into my physical work place, when I would have had to leave early and not explain where I was going, would have been a step to far today. I don’t have the capability to lie today with everything else, so decided not to break myself and take the pressure off.

I arrived home with good intentions of opening the laptop and working hard. What actually happened was tiredness. Bone tiredness that has been hovering round the edges since I found this second lump, and today I lay back down in bed and crashed out. For two hours. Ridiculous that I then feel guilty about this as I never falsely declare my time worked,  but I’m sure people think I declare my working from home as a skive. I really don’t. I am very blessed to have an understanding employer and I prioritise work where I can (don’t get me wrong – the non priority stuff is still at the bottom of a pile somewhere and will continue to be there until I get back on top).

I wake up with a couple of hours to compose myself before the man cub picks me up for the inevitable hospital appointment (it’s just a cyst, just a cyst, just a cyst). I bang in a productive few hours for work (amazing what you can do with no distractions!), and then set off for the drive to the second hospital of the day.

Tired still. Really tired. But I have this. It’s just a cyst. It’s got to be.

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