Today I took a days leave from work to go to a ‘Living with and after Cancer’ event. What even is this doing in my life? I awkwardly sat at a table at the back (of course I did!) and then random people joined me and I had to pretend I wanted to talk to strangers. Why am I so bloody socially awkward. The day was set up with some talk from ‘inspirational’ people and in their own way they were. A girl was up first who hadn’t lost her hair, but as a hairdresser she had seen some bad wigs, so now her main hairdressing business is working with girls who need nice wigs. It felt though that I was watching some free promotion in play.
Next up, there was a talk on exercise and how good it is for the body. No shock there – as a mid grown adult I’ve pretty much known that exercise was good for me since I was six. The presentation continued with somebody who used to carry a lot of weight and now is a fitness queen and promoting her business. Yep – I’m in full on bitch mode.
Then my Clinical Psychologist stood up and did his mindfulness session and had the whole room close their eyes and do the breathing exercise that I last did in my 121 session him. I couldn’t close my eyes, but watched as a whole conference room of people sat with their eyes shut and bought into the experience. It was surreal.
Lunch saved me, then the afternoon was in some smaller break out sessions where I sat and listened to the CEO of a company that was set up to support those with cancer. I reverted to bitch and couldn’t help but think that she wasn’t not paying herself. By this point I felt like I was in a promotional machine and cynical business head wondered how much these companies would have paid to get the advertising that they had had today. God, bitch mode was in full play here.
The day was saved by Bobby Moncur doing a talk in the final slot. He talked about his diagnosis with cancer of the colon and then seven years later oesophageal cancer. He was so humble, so real and so honest with his attitude. When the floor was opened for Q&A’s a few people got some cheeky football questions! It amused me. But then, someone asked how his family had coped. And by god, a room full of people watched him break. He struggled to compose himself before answering and then said the most honest thing anyone can say – he didn’t know. Do you know what – I get it. At no point will I ever understand how my family and those closest to me feel, watching me do this journey. I know it hurts them, upsets them and shakes them up; I also know that they won’t ever fully let on to that as they think I am going through enough and don’t need their emotional baggage as well. I get all of this. But I want to help them too. I want them to know that I am there with them. We are all sad, we all didn’t want to do this journey. But I wouldn’t do it with a more loyal group of folk in my corner.
Tonight, on the phone to my mother, I was trying to explain how shit I feel. I have a spot on the end of my nose (couldn’t make this shit up) and the last thing I need when this purely medicinal part of the journey is over is my boobs sorted out. I’m bald, I have no eyebrows, no eyelashes, scars in my nose as I have no hairs (so nosebleeds aplenty!), spots on my chin. My boobs are way down on my list of things I would like to sort once this crap is done. It still weighs on my mind that it is an option I will need to consider, but by, it’s not something I can deal with now.
Back in work today and one of my lovely colleagues actually told me I looked like shit! I mean, she grimaced when she said it, but she said it!!!! I’d started the day at 8:30 and I was in pretty much solid meetings through to 17:00 and I accepted I probably did look like worse than shit today. I am tired, fifth chemo is catching up with me and I am exhausted beyond anything even being a mama to a newborn does to you. I still remember that first year (I don’t do well without sleep!) and I remember being obsessed with the number of minutes sleep I had (note I said minutes and not hours because some nights it could be added up to just minutes!).
This current exhaustion is so different. Its not sleep deprivation – I could sleep for lots of hours and still feel tired – this tiredness is in my bones, in my core, in my brain. I’ve known nothing like it. My entire body is tired and I’ve known nothing like it.
But I’ll still keep trying to have this. I’m tired, but I have this.