Limbo – waiting for the lump status TBC

24/2/19

I’ve spent the weekend hiding behind the man cub. Trying to hide my true face. We saw his family yesterday and then a mate of mine today for Sunday lunch, and I have to lie about how I am. I have to remember how I was two days ago and go with that. I can’t possibly worry anyone else with this gnarly lump. Why worry them if it’s nothing.

I’ve also had the most stilted conversations with my mother. But I can’t do this to them. They do not need this worry. At all. None of us do. Aaaaaagh. My logical head is suppressing this to provide normality over the weekend for the cub, but I see my lovely CP tomorrow and I have a feeling all of this might fall out onto his lap! I am still tempted to rearrange but I also think I need it (which – wow – is something that I wouldn’t have ever appreciated before I tapped into mental health help).

Today has also been the longest day – the normality of chemo is still underway and hallucinating at 4am had me awake and promptly sacking off the 10am party it was my turn to take the cub too. The man cub was thrilled! But the cub knows I’m poorly. When we were hugging this morning and I said I would be well soon, she said again would that mean my scar would disappear. The poor cub can’t get her head round it and it breaks my heart. I feel guilty for the last year being so disjointed for her. I feel so guilty about this.

25/02/19

Back into work – day 5 after 5th chemo. I feel like shit, I look like shit, I have puffy eyes, a puffy face, I haven’t slept and I am officially grumpy.

I see my lovely CP today for my third appointment and talk to him about our cub – after one example of her writing me a note after I had said their was no more snacks before bedtime that said she was sad, she was angry, she was upset, alongside a sad face with tears he said that she sounded profound. Yes mate – she really is. And I cooked her! I couldn’t be prouder!! I then realised that I hadn’t done my homework for him – oops. I was supposed to look at my values and decide which ones were most pertinent to me. I also haven’t done any meditation. He gave me a bit of a bollacking saying that we spend every day doing our teeth for two mins so should be able to spend three mins on our mental health. That was me told!

However, we then got onto ‘unhelpful’ thoughts and why we do this to ourselves. He was really surprised by the fact that I am furious driver – and when he said it I couldn’t  really explain it. Why get mad at other idiots / traffic / lights changing etc when actually I don’t have any control over them (I need to chill out!!).  I’m also really getting my eyes opened to how I have changed during this journey and how previously even if I did have odd moments when the devil on my shoulder was at it’s best I always had the strength and will to turn back to the good in life, to find the positive with every scenario. This time I just don’t seem to have been able to find the strength. As we got near the end of the session  we touched on why I am so sad. My cub, my world, my everything and the fact that I might not be here for her literally breaks my heart in two. A few tears but I quickly pull myself back together as I do with everything. I can’t possibly think like this because if I start crying I’m not sure I’d stop.

26/09/19

It’s Tuesday! I mean, its Tuesday. Should just be another day in the cycle of chemo, but no, I am going to spend the day waiting for the result on this lump which hopefully after four days I can finally put to bed. My lovely Pauline rang me at 9am and said to come in at 3pm. Six more bloody hours. While I have to work. Jeez, I might have a timescale but I’m also going to have to be effective and try and deal with this internally. Today of all days I had a catch up with my boss who has been amazing throughout this, I can’t fault his approach and while I am probably not the easiest person to manage on a normal day he has totally had my back on my bad days.

After alerting the man cub to come pick me up at 2pm I knuckle down and try to get on with the day. The usual mundane tasks of work are seen through, I actually laugh a lot because my team are bloody hilarious – I could write an actual comedy about the craic that occurs daily with these lot! The eclectic mix, the range of ages, the wind ups versus the serious, the challenges of a role that encompasses essentially two very different teams and I couldn’t be happier. This is my happy place and I bloody well love my lot. There may be days that I wonder what the hell I’m doing – talking about champagne one minute and blocked toilets the next (don’t ask!) – but 99% of my days are spent loving what I do. And I reckon that’s a good job. I know for damn sure in my last job the ratio wasn’t that good and while the people I worked with were amazing, the job itself lost its appeal. So I class myself as very lucky that I have stumbled on this job. But luckier that I also have an amazing bunch of people who I work with. I also realise today that I don’t tell them that enough. I need to do that more. These days when I am in work and not either laid up with chemo side effects or in isolation are the days when I live well. That is down to my wonderful colleagues. I couldn’t do this without them.

I make it to 2pm, and make a swift escape to head up the road to the hospital. The man cub and I quip that we are a bit bored of this journey now. We park the car in the same back street we always do (refuse to pay extortionate fees in hospital grounds when I have legs that will walk for five mins), walk the five mins through housing estates, enter the same door through the hospital and make our way into the bowels of the hospital; hoping that we can leave with a load unburdened. The walk to the Breast Cancer Unit doesn’t ever get any easier. It’s a beautiful walk (if any walk can be in a hospital) with some amazing photos on a long corridor, of the history of our city, and we stop and take it all in as we’re early. As if we’re tourists. Just visiting. Flying visit. Nice place to be this. Honestly – you couldn’t make it up sometimes!!!!

Into the waiting room and I entered at the back end of a ‘normal’ afternoon clinic where women are waiting with partners, carers, children, parents to get their own lumps and bumps checked. I’m pretty sure the last thing they needed today was me rocking in with my bald head, clearly on a journey through treatment. I’ve never felt so shit.

But then, as we do, the man cub and I found some humour! He picked up the Caravanning magazine (that is five year old) which we have already read three times at least, and we started having a proper chuckle again. Honestly – we are the most unpopular people in the waiting room as we try to maintain decorum but usually end up guffawing laughing. I appreciate we’re in a bloody cancer waiting room, but this is what we do. I’d apologise if I offended anyone!

Because, do you know what, we are doing our best to not let this journey define us. We have this. And we will continue to have this. I am absolutely sure.

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