Genetics Analysis… phew… brutal!

24/10/18

Well today is the day, second time round. Has my lovely soft voiced, limp handshake consultant got this damn cancer out of my body. That’s going to have to wait a while, as I need to go to work! It is school half term, so I escape in early light with the car and leave the cub and her daddy sleeping like angels. All the while I am silently bricking it. I had no meetings / commitments to be going in for other than the fact that I had taken the last two days off as leave to see my best friend and her family; and that I work full time, which means I actually need to do some work! I had totally loved my two days with the bestie though, we had spent time together, laughed, joked and were happy – watching our cubs enjoying life as they always do and none the wiser of what the next stage may hold. And that had been fine.

The drive to work was the most brutal I have ever felt in terms of turmoil of emotions. I knew by the end of the day I would have a result. I just didn’t know how I would cope with either. Don’t get me wrong, cancer being out would be the preferred result; but would I feel better. I didn’t know yet.

What I kept dismissing was the little Genetics appointment in between. I had no pre-conceived ideas on that appointment at all. After bailing work early I picked the man cub up and passed over actual cub responsibilities to her Nannan and Daddit (affectionate names for the parentals).

We arrived at our little Community Hospital and before long we were in a small cupboard (which appeared to constitute an adequate environment to discuss serious Cancer conversations!), with a lady who decided that her first question would be ‘do you know why you’re here’. At that point I was caught on the back foot. Erm, I was surely there because I had Cancer, and I was under 40 and I had no family history. None. Which still confuses me. So I said just that!

Thereafter, the lady launched into a twenty minute spiel, with no pause for breath – I didn’t even get a moment to do my usual nod and ‘mmm’. There was a barrage of words, half that I didn’t understand, Angelina Jolie was mentioned more than three times, seventy percentage points were raised in varying degrees of severity against certain scenarios. She mentioned I was triple negative a couple of times which I need to go and look at. They want to look for the BRAC 1 and 2 gene and another M?? Gene. Ovarian Cancer and full removal of all associated body parts was mentioned. There was a 50% chance of something that would lead to that. And then the absolute punch paragraph in her ending speech was that I might upset relatives if I did have a dodgy gene as my sister would need to be checked, my cub could opt to get checked at 18, the parentals could be checked to see where it came from so then it could spread to wider cousins. And I could cause a lot of upset. Because all of those folk who could possibly be affected could end up making a decision about a full mastectomy.

Final question – did I really want to get checked?

By this point my head was exploding again. I was staring at Ryan willing him to say just anything, but he looked equally as shell shocked as I did. I mean, what should I say, is there a right or wrong way to deal with this. As we paused for breath, the charming lady (I mean I hadn’t even caught her profession!) was talking again. I could wait until all treatment was done, it was going to take at least three months to get the results anyway, I could wait another ten years, the offer was on the table and wouldn’t be retracted, legislation could change in testing and even if it did they couldn’t retract it as they’d offered it now. These head explosions were off again!

In all honesty, by this point it felt like she was trying to convince me NOT to go through with it. She mentioned again about upsetting folk. She mentioned that the cub would have to live with whatever decision I made. But surely she had a right to know what she was living with.

Honestly, this appointment in my journey was the worst by far. I was so confused with what was required of me, but what I wanted to require. I would quite like to know whether I have a gene, or it is just my lifestyle that might have caused this cancer. If it is the former, my cub needs to know this, if it is the latter, then my cub also needs to know that.

After finally agreeing (I mean, I just said take the bloody blood sample) to be tested, I had the actual blood sample taken and we were done. Walking out of the cupboard, in a daze, done. I’ve never been so confused in my life. I have no idea what has just happened. But my head now needs to process whether I have got cancer out of my body. I can’t dwell on this. But I am damn sure I will return to this craziness and try and deal with it in the future.

I’ve still got this.

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